About

February 7, 2017

Goodness! It’s been 5 years since I updated my update. The world has evolved since then, and language and acceptance have progressed.

When I started (and named) this blog, the Asperger’s label was all the rage, and I proudly used it. I am still proud to be Aspergerian, since it was Hans Asperger who first wrote of autism as we now think of it. But I don’t use that label much anymore; I prefer to call myself autistic.

I have long thought of myself as autistic, but 10 years ago, when I was new to my understanding, I realized that saying “Asperger syndrome” was much less stigmatizing than saying “I am autistic.” In fact, when I would mention in talks that I am proud to be autistic, that statement would generate murmurs and sometimes laughter. One person confided that she thought I was saying that for the dramatic effect, just to shock people. That was not true; I really wanted people to see that Asperger’s and autism are one and the same thing.

Today, most autistic adults call themselves that, although the old person-first language still persists in the neurotypical vocabulary, especially among those who have been involved in the autism community for a long time. They shudder when I say “autistic people” just as much as I cringe when I hear “people with autism.”

I’ve written a lot about “The Language of Autism” and have influenced some of the organizations I’m involved with to adopt suggestions to avoid medical concepts of autism, such a avoiding the use of the word “disorder” in connection with autism.

I’ve not yet shared this writing here on my blog because I’m aware that it is a huge topic, and I’ve only scratched the surface, but I am coming to the conclusion that I should share my thoughts, incomplete as they might be, so that I can get some feedback.

Stay tuned!

And thanks to everyone who has left comments here, on my Facebook page, or shared via email.


Update as of January 20, 2012 (the comment below was posted December 1, 2010):

Well, I’ve made some progress. At least I have a few posts out there! Not as much as I’d like, and I have trouble keeping up with the constantly changing landscape here at WordPress. Things that used to work no longer do, and new features are added. I’ll keep at it, and maybe this will be the year I fulfill my promise!

For a somewhat dated, though still accurate bio, see this post.

__________________

I’m quite new at this WordPress thing, so am just trying out options. Bear with me till I figure stuff out, then I will be a posting/blogging maniac.

6 comments

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  1. Irene Jenks

    I’m looking forward to reading more from that blogging maniac you mention!

    1. Michael Forbes Wilcox

      LOL! Are you trying to say I should update this entry? Okay…

  2. kimberly gerry tucker

    Hello.
    I contribute art to AANE every year. Do you review books? I was recently interviewed by Donna Williams for my book “Under The Banana Moon.” Can I send you a copy? Here is the link where the interview is located and if you have interest I will send one along to you:
    http://blog.donnawilliams.net/2012/07/11/under-the-banana-moon-by-kimberley-tucker/

  3. Bruce Sabian

    Michael-
    I was able to restore your original comment and it’s back up on my blog now.

    Bruce

  4. Deb Connors

    Thanks so much for being available for the AANE workshop today. You voiced and confirmed ideas that have been emerging throughout my teaching career; namely, that autism is not a disease to be eradicated, but a different way of “being” in this world. Certainly, we can all benefit from instruction or tools that help us navigate this complicated, crazy life, but I never want to fundamentlly “change” the students in my charge. They are phenominal human beings, and my life has been truly enriched by knowing them.

    Please keep me in the loop regarding other local workshops or events. I feel inspired to be a better educator!

    Thanks again,

    Deb Connors

    dconnors {at} leepublicschools(.)net (wk)
    DebraConnors {at} icloud(.)net (personal)

  5. Actually Autistic Blogs List

    Your blog is currently included on our Actually Autistic Blogs List (anautismobserver.wordpress.com). Please personalize your blog’s description by selecting “About the list/How do you want your blog listed?” from the top menu on that site.
    Thank you.
    Judy (An Autism Observer)

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